Archive for March, 2007

posted by Link on Mar 21

Dearest Friends and Family,
On Friday the Doctors are having a meeting to discuss all of their findings, the results of the tests, etc.  In this meeting they are going to decided what they think of Annika’s illness.  So far, they have not found anything that they are 100% sure of, so whatever it is, it probably won’t fit into the studies going on at NIH, which means that we would have to go elsewhere.  Of course, there are more tests to run…

Basically, Annika’s illness is beyond the scope of Modern Medicine.

Everybody, please pray that Annika’s cancer goes away of its own accord.  Let us hope that Anni has overcome all of her prarabhda that requires her to go through hospitals…  Pray that she no longer has to suffer through treatments and diagnostics; that the Maha-Doctor takes charge and fixes things the truely right way…
Thank-you all so much for your love and prayers…
-Link

posted by Kamala on Mar 21

The last four days have been a time of recuperation from the ordeal at NIH.  Until Monday, Tim and family with Rosa were here.  Every morning, Anni went for a longer and longer walk with Rosa and part of the group.  Her nausea was terrible however, and she wasn’t eating much at all. Each day started off with vomiting, and she fought to keep even liquids down.  Tuesday started off with vomiting for her.  A visit with old and rarely seen family friend, Dr. Joe John had been scheduled.  I last remember him as a small and bright eyed boy when I was in my early twenties.  His mother and Grandma were old friends.  We knew his family was Indian, but as we were in the US, somehow the discussions of ‘back home’ never took place with the press of present activities.  Young Joe went on to become a Surgeon, but an eye problem took that opportunity away.  Undaunted he acquired a second MD in anesthesiology.  He now works as a teacher at John Hopkins medical school.  They brought a lovely looking fruit pie that has those crumb and chocolate crusts.  I tried tempting Anni, who by this time, had steadfastly refused to eat anything, she again refused, giving me a dangerous look.

Shortly after everyone was settled in the living room and I was in the process of considering the necessity of serving chai and pie in the kitchen, I heard a lot of Malayalam.  I went in, and another little amazing Grace – Joe and his mother are from Trissur, Kerala!  All these years and we never knew it!  Pappu, our dear friend who has stayed on even after his brother Arun had to go back to work in Ohio, was pleasantly surprised.  I got absorbed in the conversation, and Pappu made delicious ginger chai and cut up the pie.  Joe and particularly, his mother were suitably impressed that Anni and Link spoke Malayalam that they could understand.

Dr. Joe was wonderful.  He really looks and feels like somehow he must be Amma’s brahmachari.  He is very jolly.  He laughs a lot and has a remarkable practical and humble outlook on life.  One immediately feels relaxed around him. He gave Anni a detailed, vivid description of the normal cells, tumor cells, and bystander cells present in the body, and why she had to work to keep the normal cells fed.  He described the imperative need for her to exercise her will power to override the signals her body is sending her, and to carry out those activities and food consumptions that will bring health to the normal cells, so they can kick in and do their part to fight the tumor cells.  He described how the tumor cells didn’t get the same food services as the normal cells, which is why some of the biopsy was necrotic or dead cells.  He spoke about her ability to stop the signals when they start to impact the thought wave and form different messages to send her body.  We found out about a new type of anti nausea medicine.

The end result was a smiling Anni eating her fruit pie.  Two hours later, she had more of her meds.  An hour later, she ate rice, dal, ice-cream, milk….and 15 minute later, all but the afternoon pie came up.  We all felt very sad.

Today, Wednesday,  fighting the nausea, she gingerly began her foray into the food world…with little half cups of liquids, small amounts of fruits, (baby sized Clementine’s) some kale,  some yogurt soda…Through our dear Dr. Sudharshan at NIH we were able to get a new prescription for the new nausea medicine.  By 6PM the new anti nausea medicine had kicked in, and she had a 2/3 bowl of O’s cereal – sweetened cereal in the shape of small O’s. -  then another set of her pain medicines…and, now, with the nausea under better control, is again having some Matzo meal crackers and boost – a little more concentrated than what we get in India – so far its staying down, and her eyes have their sweet brightness a little more….its been so hard for her to deal with the nausea…with the lack of appetite due to the cancer, it has been literally impossible for her to eat…

So, the great news is ANNI IS FINALLY EATING!!!!!!!!  She has begun to resist the sickness with her mind.  Until now, the body was overriding her…it’s so hard when you feel to sick to do anything, and your racked with horrendous pain…to stand up in a shambled body and affirm life – as we know and understand it.  But it seems, Joe’s message (which was really who’s?) came home to her. 

It shows me that each and every person is so important for her healing.  Each and every person has something to offer her, in a way that she can take it in.  As her mother, even if I say something similar, it is not the same as if one of you tells her….You are all the Dr.’s and the bearers of Grace for her healing…it is all our Amma working through all of you.  We are so grateful.  We are so grateful to see her trying to eat, and EATING! We only need our Amma to stand up inside Anni, and all sickness will flee.  Jago Ma Kali Jago, Jago!
-Kamala

posted by Kamala on Mar 17

Yesterday, Dr. P. of Neurosurgery did a lumbar puncture on Anni.  Along with blood draws and another brain scan, bone scan and the biopsy on Thursday of the tumor on the kidney, it was the last of the extractions of body fluids and tissues to diagnostic testing. I was lucky to be able to stay with Anni during the puncture and she squeezed my fingers hard. She yelled loudly at two points. The procedure seems to have affected her right leg, and it seeks to turn inward now, and is paining her significantly. At about 12PM, I suddenly felt filled with a positive lightheartedness. I really felt, Anni is going to be fine. Her time of medical suffering is over by Amma’s grace. She will begin to get better.At about 5PM, our Drs in charge team came in, and told us that preliminary findings indicated that the brain/spinal fluid was completely normal in all aspects. They don’t know what the thing is in her mid-brain. They were still not sure what kind of cancer it is, but it appears to be some sort of kidney cancer, possibly pediatric.

Even with this prognosis, I still do not feel worried. I am sure that Anni is going to get better by Amma’s divine sankalpa.  Nothing can stop that.  I do not know if She has made a sankalpa for Anni, but, I feel She has.  I feel Anni’s health and healing lay in her listening obediently to herself, and all of us helping her to. She is so kind, considerate and adjusting to people, that she does not listen to her own messages for quiet, drink, food, etc….

This morning, Anni insisted on cutting off her long hair.  It hurts her to care for it, Her arms ache, head aches, etc. despite all of our pleas for her not to do it, and promises that we would care for it…  A friend told us about an organization called “Locks of Love” in Florida which collects hair 10″ and longer to make wigs and hairpieces for people who lose their hair due to cancer and medical treatments.  It made me quite a bit sad in the heart to see my daughters’ beautiful thick braid go, but she was happy to be able to give something, do something for others in this time… so, I am also donating my old-lady locks to the effort, after all, I have far less need of locks of hair than Anni… actually, neither of us care that much, and would go for the head shave if we could, but for the sake of visible normalcy, haven’t… In her case, however, she looks like an elegant young professional type, in mine, I look like the bag-lady on the street…  When Link gets 10 inches, he will probably be sending his as well…  with his lush curls, I think whoever gets it will feel like dancing… his last shave he gave to the Lord, but…

Our dear friends who are visiting us here cut it and did the final trimming for us…

We will try to get some before and after photos of Annika up soon.

Uncle Jeff talked to the Dr.s again today, they still have no clear diagnosis, something about sarcoma, still looking pediatric… weird and horrible treatments, poor prognosis on the medical front, but not the front of God… My Lord can do anything She wants… I do not feel that Anni has anything anymore…

Thats pretty much our news to date… other friends in the medical world are making connections to Dr.’s at John Hopkins… we shall see what the Lord has in mind to show us all.
-Kamala

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